Why my answer to this question will be a lie – “Didn’t you have the test?”

As a mum of a child with Down syndrome, I think one of the worst questions a stranger can ask is: “Didn’t you have the test?” This is not a question that you should ever ask anyone that you’ve never even met, but have randomly bumped into one day. Honestly, it happens. I’ve heard stories … Continue reading Why my answer to this question will be a lie – “Didn’t you have the test?”

Why for us, honesty is the best policy – talking to siblings about Down syndrome

Quite often within the Down syndrome online community I hear the question, “how and when should I tell my children that their sibling has Down syndrome?” I guess there isn’t a right or wrong answer, and in no way is what I write here judgmental or preachy in any way. I know some families think … Continue reading Why for us, honesty is the best policy – talking to siblings about Down syndrome

What parents of children with Down syndrome really want you to hear.

I wanted to put something together to give new parents of a child with Down syndrome some hope. I googled frantically when River was diagnosed and all I really wanted to read was that everything was going to be ok! And it is going to be ok, honestly. Being told that your child has Down … Continue reading What parents of children with Down syndrome really want you to hear.

Myths about Down syndrome. How many did you think were true?

I’ve said it many times before, and I’m about to say it yet again. The hardest part of raising a child with Down syndrome is not the disability itself, but the attitude of society. The hardest part is not Down syndrome, it is other people. There are just so many assumptions about what Down syndrome … Continue reading Myths about Down syndrome. How many did you think were true?

Can you imagine living in a world that thinks your child shouldn’t be alive? I have a son with Down syndrome and I can

Can you imagine reading something every day that questions your child’s right to life? Can you imagine knowing that a huge percentage of people in society think your child shouldn’t have even been born? Can you imagine knowing that people look at your child and see something abnormal and scary? Can you imagine waking up … Continue reading Can you imagine living in a world that thinks your child shouldn’t be alive? I have a son with Down syndrome and I can