Why my answer to this question will be a lie – “Didn’t you have the test?”

As a mum of a child with Down syndrome, I think one of the worst questions a stranger can ask is: “Didn’t you have the test?” This is not a question that you should ever ask anyone that you’ve never even met, but have randomly bumped into one day. Honestly, it happens. I’ve heard stories … Continue reading Why my answer to this question will be a lie – “Didn’t you have the test?”

Why for us, honesty is the best policy – talking to siblings about Down syndrome

Quite often within the Down syndrome online community I hear the question, “how and when should I tell my children that their sibling has Down syndrome?” I guess there isn’t a right or wrong answer, and in no way is what I write here judgmental or preachy in any way. I know some families think … Continue reading Why for us, honesty is the best policy – talking to siblings about Down syndrome

Can you imagine living in a world that thinks your child shouldn’t be alive? I have a son with Down syndrome and I can

Can you imagine reading something every day that questions your child’s right to life? Can you imagine knowing that a huge percentage of people in society think your child shouldn’t have even been born? Can you imagine knowing that people look at your child and see something abnormal and scary? Can you imagine waking up … Continue reading Can you imagine living in a world that thinks your child shouldn’t be alive? I have a son with Down syndrome and I can

When somebody prayed for my sons Down syndrome to be ‘cured’.

I receive a lot of lovely messages and I love reading them, but today I got one that took my breath away. Not in a good way. To the lady who sent the message, I know your intentions were good and I know you meant no harm. I just feel that this is a point … Continue reading When somebody prayed for my sons Down syndrome to be ‘cured’.