Why my answer to this question will be a lie – “Didn’t you have the test?”

As a mum of a child with Down syndrome, I think one of the worst questions a stranger can ask is: “Didn’t you have the test?” This is not a question that you should ever ask anyone that you’ve never even met, but have randomly bumped into one day. Honestly, it happens. I’ve heard stories … Continue reading Why my answer to this question will be a lie – “Didn’t you have the test?”

Why for us, honesty is the best policy – talking to siblings about Down syndrome

Quite often within the Down syndrome online community I hear the question, “how and when should I tell my children that their sibling has Down syndrome?” I guess there isn’t a right or wrong answer, and in no way is what I write here judgmental or preachy in any way. I know some families think … Continue reading Why for us, honesty is the best policy – talking to siblings about Down syndrome

From the moment my son with Down syndrome was born, he has had to prove his worth.

I never look at River and think lifes unfair. I never look at him and wish he was different, and I never look at him and feel sorry for him. Down syndrome just doesn't make me feel pity for him, as he has a wonderful life and other people have it so much worse. Having … Continue reading From the moment my son with Down syndrome was born, he has had to prove his worth.

Dear Stranger, your son has Down syndrome and I couldn’t help but stare.

  Dear stranger, I may need to apologise to you, I think I may have ruined your day. You probably think I'm just another person who doesn't understand, but I wanted to explain to you that I do. I get it. I wasn't just another person staring at different, another person made to feel uncomfortable … Continue reading Dear Stranger, your son has Down syndrome and I couldn’t help but stare.