Why for us, honesty is the best policy – talking to siblings about Down syndrome

Quite often within the Down syndrome online community I hear the question, “how and when should I tell my children that their sibling has Down syndrome?” I guess there isn’t a right or wrong answer, and in no way is what I write here judgmental or preachy in any way. I know some families think … Continue reading Why for us, honesty is the best policy – talking to siblings about Down syndrome

Medical Professionals – Words Matter

  It is so important that medical professionals choose their words carefully, as they have the power in their hands to shape a families future. Their reactions and attitude are literally what stands between a family choosing to end a pregnancy or take that journey. "I'm so sorry but we have detected that your baby … Continue reading Medical Professionals – Words Matter

The Things down syndrome has brought to our lives, and the things it hasn’t.

When I first started to write this, the plan was to write about 10 positives that Down syndrome has bought to my life and 10 negatives. I wanted to be honest, show both sides of the story and not be quite so ‘everything is rosy’. But I really struggled to come up with 10 negative … Continue reading The Things down syndrome has brought to our lives, and the things it hasn’t.