Dear Skyler, I’ve wanted to write this letter to you for so long, but for some reason the perfect words just haven’t come. No words seem like enough and you are so much more than I can express. But I can see you growing up before my very eyes and I have decided that … Continue reading A letter to my first born son
“No, you are mourning the life you THINK he was meant to have, the life you WANTED him to have. He is already living the life he was meant to have’.
When River was diagnosed and for quite some time after, people often used to comment that ‘it must be mild’, ‘you can’t even tell’ or ‘he must only have it a little bit’. And even though I soon learnt that it wasn’t even possible to have Down syndrome mildly, that you either have it or … Continue reading Is my son ‘high functioning’?
I am River 